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Prayers for my dad
#21
Update for y'all - Dad had the small tumors removed from his kidney yesterday. The surgery was successful and they were able to save about 90% of the kidney. I saw him for an hour or so last night and he seemed to be doing pretty well. A little out of it due to the pain killers and whatnot but in good spirits. He'll have to stay in the hospital through the holiday weekend unfortunately, but should be able to discharge early next week. He won't be able to do much for awhile as they had to cut through the muscle in his back to get to the kidney, but I'll be there to help out w/ the yard and whatever else my parents might need so it will be ok.

I'll keep you guys updated as I find out more. Thanks for all the kind words, thoughts and prayers. They are appreciated, we can feel the love coming in from all around the country Smile
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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#22
Dad goes in for surgery tomorrow to remove the kidney with the large tumor in it. He's a little scared this time because he has an idea of what to expect, but this procedure should be less invasive and hopefully will have a better recovery time. I know he's annoyed with how exhausted he is all the time and w/ how weak he feels physically. He has cut his hair real short before both surgeries, I'm not sure if he's supposed to have chemo after this one or not...I'll have to ask about that. To show my solidarity w/ him, I decided to use the "1" razor all around on my head yesterday. Here is the end result, comments about my five-head are allowed...I've been making them ever since. Toungue

[Image: 970604_10101445064785549_2109273999_n.jpg]
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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#23
Dad's surgery went well. He is on a *poopy*-ton (that's the medical term) of pain meds and will hopefully be able to discharge in the next 2-3 days. Sounds like they plan to follow up on the possibility of lung cancer in about 2 weeks. I'm hoping to go up there and visit him tomorrow after work.
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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#24
Glad to see his surgery went well. Definitely saying an extra prayer tonight.
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#25
slight update: dad goes in to see the MD on Monday, I believe, for an update on his condition as well as follow up on whether they need to do anything further regarding his lungs. I feel like I am not doing enough here, been so caught up w/ helping Ashley w/ her dad that I am not sure what's going on w/ my own dad any more. I was over there on Sunday and he seemed to be in good spirits. Still a little slow and he's still in a decent amount of pain. Hopefully I'll have time to get over there this week and talk to them some about what's going on...
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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#26
well, more bad news - the doctors confirmed my dad has lung cancer and he will start treatment next Tuesday. The treatment is called IL-2 (Interleukin-2) and is supposed to boost the immune system to allow the body to fight the cancer that is attacking it. One concern is that this therapy can cause issues w/ the kidney; dad's kidney is functioning very well but they will have to monitor him closely to make sure the treatment doesn't have a negative effect.

He will be in the hospital 5-8 days for the 1st round of treatment. He will then be home for a week before going back in for round 2 which will be another 5-8 days. They will then do more CT scans to see how effective the treatment is. Apparently there's about a 30% chance of the treatment being effective. He is young enough and healthy enough, even w/ the kidney cancer, to be considered a prime candidate for this treatment.

I can only imagine how he is feeling right now. We went over there tonight to talk all this over w/ my parents. Sounds like there may have been some nerve damage either from the initial surgery to repair his kidney or from something he's done since then - he's got a lot of pain mixed w/ numbness in his legs and groin area. He's really tired of not being able to work; apparently, the doctor told him he will be able to go back to work after the first two rounds of therapy assuming that things go well. I hope he can for his own sanity, I know it's driving him crazy being stuck at home like an invalid all day long. I appreciate you guys keeping up the prayers, positive thoughts, whatever works for you. I'll keep updating this as I learn more...
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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#27
Lots of ups and downs. Glad to see your keeping positive and sane though. (Don't sweat about the site stuff) I couldn't image what you guys are going though marriage wise. Just keep your head up.
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#28
Thanks, Jerry.

Today's my dad's 56th birthday. They discharged him from KU Med yesterday afternoon after completing 9 of the scheduled 10 rounds of IL 2 therapy. It was pretty rough to watch him going through it, the side effects were pretty unpleasant...uncontrollable shaking (rigors,) nausea/diarrhea, sores in his mouth, insanely low (84/41) blood pressure combined w/ high (120s) pulse, etc. The shaking was the worst, it was almost like he was having a seizure and they would have to come shoot him up w/ some demerol and something else (dilaudid maybe?) to calm his body down. It ended up being too much and after 5 days straight of these treatments they stopped just short of their goal and let him go home.

He's feeling pretty discouraged right now. Says that he doesn't like all the side effects and wonders if chemo would have actually been the easier course of action; especially because they want him to come in for another round of treatment before they do another CT scan to check his lungs to see how effective this has been. We were over there tonight to have dinner w/ my parents and sister and at one point he was in intense pain because we were all talking at the same time and it was making his ears ring - like his brain can't handle too many things at one time. He also said that food is tasting weird - like he'll taste something tart and it will taste sweet, or the flavor of something will be really concentrated and overwhelming.

I'm pretty worried at this point about what another week of treatment will do and how he will take it...or if he'll even let them do it. I know he plans to ask a lot of questions when he sees the MD Thurs for blood work. I just really hope this treatment is effective or all the pain and suffering he will have gone through will pretty much be for thing. Only time will tell at this point.
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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4 Doors FTW

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#29
Realized that I haven't updated this in a while. Dad is in ICU for his last round of IL-2 treatment this week. The doctors say they don't recommend any more than three sets of two week-long rounds. I know when they checked his lungs after rounds 3 and 4 they said his tumors had shown some signs of shrinking which is good. Just like before, the goal is 10 doses of this drug each round of therapy.

Last time he only made it through 5 rounds before his body started to shut down and they had to stop. This time it sounds like they're stopping after 6 rounds. I left work to go see him yesterday after my mom text me saying that he didn't remember his own name, DOB, who she was, where he was, etc. By the time I got there he was more lucid and knew who I was but he was definitely pretty out of it. He told me he was in a lot of pain and felt pretty crappy. I guess after his treatment last night he told my mom and the doctors that he didn't think he could handle any more. He always seems to rebound after a week or two of recovery time but it's just very scary during the times when he's in the hospital.

They'll do more labs about 6 weeks after he discharges to see how the cancer is progressing and then discuss his options for any other forms of therapy. Trying to stay positive that he's going to be ok and will be around for a while still but it's not easy when I see him so beaten down.
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
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4 Doors FTW

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#30
Hey guys, figured I would give an update here. Not good news, unfortunately. My dad started feeling numbness in his legs along w/ severe pain in his back and shortness of breath with exertion. The doctors did a bunch of lab work and didn't come up with anything so they decided to send him in for an CT of his chest/abdomen and an MRI of his brain.

The MRI came back showing a tumor located deep in the middle of his brain. This was causing a lot of swelling in his brain which accounts for his symptoms. The doctors did some more scans to rule out any other issues and decided that they feel they can remove the tumor surgically. Dad's going into the hospital tomorrow. They're going to have to cut a hole in his skull to remove the tumor and will follow up with radiation therapy to shrink/kill any leftover cancer.

I did a lot of reading on this and it doesn't look good. Once the cancer starts spreading from the kidney to other organs, the prospects of long-term survival go down drastically. Cancer in the brain brings with it risks of seizures and convulsions as well as potential for other issues such as change in behavior/personality, difficulty speaking, difficulty walking, etc. It all depends on where the tumor is and how they have to attack it. I'm hoping things go smoothly, of course, but I'm pretty worried about how this is going to play out. I'll update you guys tomorrow or later in the week once he's out of surgery and I know more...
Jackie-O Wrote:My house is home to the illusive, yet powerful, Nom Noms. He will eat your babbys. His eyes are like laser beams, his claws are sharp talons. He slaps like a pimp and makes dogs run in fear.
Your resident smartass mod.
4 Doors FTW

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